Hyderabad: Cure SMA Foundation of India, a parent-led non-profit organization dedicated to supporting families affected by Spinal Muscular Atrophy (SMA), is organizing the 3rd edition of Run for SMA–2025 on Sunday, August 10 at Gachibowli Stadium, Hyderabad.

The press conference was graced by Avinash Mohanty Commissioner of Police, Cyberabad, along with Cyberabad Jt. CP Traffic Dr.Gajarao Bhupal who Unveiled the official poster of the Run for SMA and extended his support to this important public health awareness initiative.Also present were leading medical and research experts including Dr.Radha Rama Devi, Senior Geneticist and Pediatrician at Rainbow Children’s Hospital, Dr.Giriraj Chandak, Former Chief Scientist at CSIR–CCMB, Mr.Naved Alam Khan, CEO, Society for Cyberabad Security Council and Cure SMA India trustees Ms.Srilakshmi and Ms. Archana and representatives, launch held at held at Cyberabad commissioner office, Gachibowli.

Commissioner of Police, Cyberabad Avinash Mohanty emphasize that  Spinal Muscular Atrophy (SMA) treatment is important, prevention through awareness and early screening is even more critical. Commending the SCSC Health Forum for organizing the “Run for SMA,” he noted that such initiatives are vital, especially since treatment is costly. Collective efforts like these reflect the commitment to positive change. 

As part of the campaign, the CP also launched the official poster and T-shirt for the run, encouraging continued support for this meaningful cause.

Srilakshmi Nalam, Co-founder and Trustee of Cure SMA India, stressed the need for collaboration between medical professionals, research bodies, corporates, and the government to create a sustainable ecosystem for rare disease families in India.

Run for SMA is part of global SMA Awareness Month observed in August.The Run includes timed and non-timed running categories—21K, 10K, 5K, and 5K non-timed—with attractive cash prizes for winners in various categories. Registration includes a T-shirt, medal, certificate, and breakfast.

The run is expected to see enthusiastic participation from students, corporate employees, medical professionals, SMA families, and the general public. It aims to raise awareness about Spinal Muscular Atrophy, a severe and rare genetic disorder that affects children’s muscle strength and movement, often leading to respiratory failure if left undiagnosed and untreated.

While treatment options have recently become available in India, their extremely high cost makes them inaccessible to most. Hence, awareness and prevention, especially through genetic carrier screening, are crucial to reducing the disease burden in future generations, She added.

Registrations are open and the public is invited to join hands in creating awareness and hope for the SMA community. 

Registration Link: 

http://ifinish.in/running/runforsma and For more information: call : 8885004858